SYMPOSIUM ON AHC
HOSPITAL SANT JOAN DE DÉU, BARCELONA (SPAIN)
9th February 2019
9:00h Morning Session – Chair Dr. Jaume Campistol
9:15h. Opening and Welcome
Alternating Hemiplegia of Childhood. Current situation and understanding of the disease.
Dr. Carmen Fons, Hospital Sant Joan de Déu (Barcelona, Spain)
9:45h Family associations’ role in research for AHC. Rosaria Vavassori, IAHCRC International Consortium for the Research on Alternating Hemiplegia of Childhood
10:15hOBSERV-AHC Prospective Observational Natural History and Therapy Study.
Dr. Mohamad Mikati, Duke University Scool of Medicine (Durham, USA)
11:30h Behavioural disorders and psychiatric comorbidity in AHC. Dr. Eleni Panagiotakaki, Centre Hospitalier Universitaire de Lyon (France)
12:00h Therapeutic alternatives in AHC. Dr. Elisa De Grandis, Università degli Studi di Genova (Italy)
12:30h Video presentation of the AAV9 gene therapy project.
13:00h General Discussion 13:45h Lunch break
15:30h Afternoon Session – Chair Dr. Carmen Fons & Bridget Vranckx
15:30h Meet the Expert. Dr. Mohamad Mikati
17:30h Meet the Expert. Dr. Eleni Panagiotakaki
18:30h End of Symposium
Dr. Carmen Fons, Head of the Paediatric Neurology Service, HSJD
Dr. Jaume Campistol, Paediatric Neurologist, HSJD
Bridget Vranckx, President of AESHA
Marc Gambús, Secretary and Treasurer of AESHA
Albert Vilamala, Member of AESHA Board
The registration at the Symposium on AHC is free for those attending the 6th International Symposium on Paediatric Movement Disorders.
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