Cure AHC Awards $59,200 Grant to Duke University for Clinical Research Coordinator

Cure AHC Awards $59,200 Grant to Duke University for Clinical Research Coordinator

Cure AHC Co-Founders Jeff & Renee Wuchich with members of the Duke AHC Clinic Team

From Left to Right: Rick D’Alli, MD, Lyndsey Prange, RN, Mohamad Mikati, MD, Jeff & Renee Wuchich, Sujay Kansagra, MD, Lindsay Johnson

Cure AHC awards $59,200 Grant to Duke Children’s Hospital

Proceeds will Hire Clinical Research Coordinator to Expand Clinic Reach

 

Rolesville, NC, October 26, 2015 – Cure AHC, Inc. has awarded a grant of $59,200 to Duke Children’s Hospital & Health Center to hire a clinical research coordinator (salary and benefits) for the Duke AHC Multidisciplinary Clinic under the supervision of pediatric neurologist Mohamad Mikati, M.D..

This coordinator will be dedicated solely to Alternating Hemiplegia of Childhood (AHC) research at Duke, responsible for maintaining data for AHC research. This coordinator will also help with data analysis and summarizing observations, including findings in cardiac, sleep, behavioral, developmental, and perhaps most importantly therapeutic interventions. This coordinator will also assist in writing scientific publications and grants for long-term research in the AHC field. Finally, he or she will work with treatment teams at other medical institutions to collect research data and create customized treatment plans.

“This role will allow us to greatly expand the reach of the AHC clinic so we can positively impact the lives of more AHC patients, and collect needed research data faster,” Mikati said.

“Cure AHC recognizes the importance of such a role, and is committed to ensuring that the role remains funded and the work done is of utmost quality,” said Cure AHC Co-Founder and President Jeff Wuchich. Cure AHC is working with several potential major donors to secure the funds for the 2015 End of Year Global Challenge Grant Campaign, with plans to earmark a portion of raised funds to fund this position beyond 2016.

Alternating Hemiplegia of Childhood (AHC) is an incurable, rare and painful neurological disorder that causes episodes of temporary paralysis that last minutes or even days. AHC is often mistaken for cerebral palsy or epilepsy, which impairs the ability to learn and communicate. AHC also affects muscle control, causing shallow breathing and difficulty walking and swallowing. Researchers discovered the gene that causes Alternating Hemiplegia of Childhood (AHC) in 2012 and they continue to make progress in their understanding of the disease, which aids in better treatment and ultimately a cure for AHC sufferers, as well as potential benefit to more mainstream diseases such as epilepsy, stroke, and heart disease.

Cure AHC is a 501 (c) 3 Non-profit organization that was created to raise awareness and research funds to develop a treatment and discover the cure for Alternating Hemiplegia of Childhood. Donations to Cure AHC can be made online through the www.cureahc.org  or a check may be sent to Cure AHC, Inc. at 545 Irina Drive, Rolesville, NC 27571. For more information about Alternating Hemiplegia of Childhood (AHC) please visit www.cureahc.org or contact info@cureahc.org.

For those who may be interested in the position, please contact Lindsay Johnson at Duke 919-668-4073 or lindsay.m.johnson@dm.duke.edu.

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