Cure AHC Is pleased to share that there have been several Cure AHC funded research projects presented at conferences and officially published.
At the American Academy of Neurology’s Annual Convention, and published online at http://bit.ly/2wnycLc , the research team at Duke presented “Characteristics of Status Epilepticus in Alternating Hemiplegia of Childhood”. This presentation concluded that High frequency within the AHC population, high recurrence rate within each patient, and occurrence after AHC spells or during drug taper are features of SE in AHC. Regression is not a must, but clinicians should be aware to treat early.
Researchers at Duke also published in Developmental Medicine & Child Neurology research funded by Cure AHC. The article, featured at http://bit.ly/2vyGOBj and entitled “Motor function domains in alternating hemiplegia of childhood” helps prove that motor speech is significantly affected (thereby helping to justify speech therapy cervices covered by insurance) as well as establishes some potential benchmarks to measure against to show efficacy of potential treatments for AHC. Check out our YouTube channel soon for a video that accompanies this article.