Cure AHC celebrated International Rare Disease weeks in a variety of ways.
Our Board Member Satish (see pic at left) presented at a conference for Rare Diseases in India. Learn more about the event here.
Cure AHC Vice President Tony Pena went to Washington DC to represent Cure AHC in meetings on Capitol Hill with members of Congress to advocate for a variety of needs for the rare disease community.
Rare Disease Legislative Advocates (RDLA), who organized the events in DC, also placed a 2-page ad in Politico (a regularly read paper of members of Congress and their staff) featuring all the groups who participated (you can see Cure AHC highlighted).
We are grateful to everyone who helped spread awareness about rare disease in general , and about AHC and Cure AHC’s efforts in particular). Awareness does lead to funding and funding will lead to a CURE!