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June 2016

Cure AHC 2nd Annual One in a Million Golf Outing

June 27, 2016 @ 11:00 am - 8:30 pm
Knoll West Country Club, 990 Greenbank Drive
Boonton Township, NJ 07005 United States
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Please Register Here (You will Pay for Registration on Next Page)   First NameLast Name Street City State/Province Zip Mobile Email T-Shirt Size: Needs and Requests:

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July 2016

2nd Annual Cure AHC Virtual Run/Walk/Active Fundraising Event

July 15, 2016 @ 12:00 am - July 31, 2016 @ 11:55 pm

If you enjoy running or walking, biking, and the like in honor of an AHC Champion (or would like to start doing so), then please join in the fun July 15-29. This is our 2nd Annual Virtual Run/Walk/Active Fundraising Event. This event celebrates the Anniversary of the publication of the AHC Gene Find by Duke University July 29, 2012. It is very simple to Participate: 1.  Register via this form (please write in Virtual Event16" in the Event Name) First…

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2nd Annual Cure AHC Chicago Walk

July 23, 2016 @ 10:00 am - 2:00 pm
McCollum Park, 6801 S. Main St
Downers Grove, IL 60516 United States
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July 23 will be a big day of celebration, awareness, and fundraising for Cure AHC in the beautiful Chicago Suburb of Downers Grove. This family friendly event will celebrate the birthday's of AHC Champions Alex (IL, USA) and Matthew (NC, USA) You will want to register & start fundraising NOW, as those who raise at least $100 will be eligible for a drawing to WIN 7 night accommodations at Hacienda Tres Rios in Playa del Carmen, Mexico! Please  use the…

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September 2016

3rd Annual Del’s Ride

September 18, 2016 @ 11:00 am - 6:00 pm
Sleepy Hollow Inn, Ski & Bike Center, 427 Ski Lodge Dr
Huntington, VT United States
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Del's Ride- Climb for a Cure   Del's Ride is a single track mountain bike event and trail run (new in 2016!), to benefit Cure AHC in support of Delaney Johnson. 7-year-old Delaney, of Essex Junction, Vermont, has a debilitating disorder known as Alternating Hemiplegia of Childhood (AHC) and Epilepsy. There is currently no cure or 100% effective treatment for AHC. This year our fundraising goal is $20,000. You can help us beat it by JOINING US!   Can't make…

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June 2017

3rd Annual One in a Million NJ Golf Tournament to Cure AHC

June 26, 2017 @ 11:30 am - 9:00 pm
Knoll West Country Club, 12 Knoll Dr
Boonton (Parsippany), NJ 07005 United States
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July 2017

AHC Family Gathering Hosted by Cure AHC

July 19, 2017 @ 7:00 pm - July 22, 2017 @ 1:00 pm
Marriott Cambridge, 50 Broadway
Boston, MA 02142 United States
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Join us in Boston at the Marriott Cambridge July 20-22nd for our AHC family gathering. ALL AHC families from anywhere are welcome to attend. There will be opportunities to meet members of the Duke AHC Clinic (and learn how to plug into AHC clinics), hear updates on research, discover ways to improve quality of life for AHC Champions (such as behavior, learning, medication management, IEPs, and more), bond with fellow AHC parents and caregivers, and learn more about how you…

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August 2017

Comedy Night to Cure AHC

August 5, 2017 @ 4:00 pm - 10:00 pm
UAW Local 72 Union Hall, 3615 Washington RD
Kenosha, WI 53144 United States
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  Saturday, August 5 will feature an evening of fun and fundraising you'll want to be sure to catch!  The Union 72 Hall will be the scene starting at 4:00 PM .  The Comedy Night Fundraiser to Cure AHC will feature:  Baked Potato Bar Band Comedy Show Silent Auction Bachelor & Bachelorette Date Night Auction Register/Fundraise HERE

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Cure AHC NC Golf Tournament

August 11, 2017 @ 11:00 am - 6:00 pm
Lochmere Country Club, 2511 Kildaire Farm Rd,
Cary, NC 27518 United States
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Lochmere Country Club, Cary, NC will be the scene of fun and fundraising August 11, 2017, to help research momentum moving forward for AHC- Alternating Hemiplegia of Childhood.  Check-in begins at 11, lunch served at 11;30. Shotgun start at 1 PM. This will be a "scramble" format with teams of 4 (note details about teams below).  There will be prizes for top fundraisers (you will receive an email with a fundraising page you can customize), and for your performance (or…

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4th Annual Del’s Ride

August 27, 2017 @ 11:00 am - 7:00 pm
Sleepy Hollow Ski and Bike Center, 427 Ski Lodge Drive
Huntington, VT 05462 United States
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                  2017 Del's Ride and Trail Run Sunday, August 27, 2017 12:00pm 6:00pm Join us for the 4th annual Del's Ride at Sleepy Hollow Ski and Bike Center in Huntington VT. This mountain bike ride and trail run raises money to benefit Cure AHC: Alternating Hemiplegia of Childhood. Del's Ride 2017 will have two loops for riders from about 7 miles to 20 miles, a 5-6 mile strenuous trail run, as well…

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October 2017

1st Annual Cure AHC NC Womanless Beauty Pageant

October 21, 2017 @ 4:00 pm - 8:00 pm
Thomas G. Crowder Woodlands Center, 5611 Jaguar DR
Raleigh, NC 27606 United States
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Get ready for an event that is sure to entertain (and wlll bring us ever closer to the Cure!) Saturday, March 24 at 4 PM 10 "beauties" will take the stage at the Thomas G. Crowder Woodland Center in Raleigh, NC to show off their talents, and woo you to support them to win fantastic prizes as we raise funds for research to cure the rare disease alternating hemiplegia of childhood. There will be food, a silent auction, vendors, and…

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