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October 2015

5th Annual “Let’s Cure AHC” NC 5K/1.5 Mile Walk

October 25, 2015 @ 8:00 am - 5:00 pm
Unnamed Venue, 500 Scarboro St.
Rolesville, NC 27571 United States
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RACE RESULTS - follow this link: http://bit.ly/Pcdh7I A Day of Fun, Food, Fellowship, Friendly/Fierce Competition, and Fundraising is in store! Come Join us in Rolesville for the 5th Annual "Let's Cure AHC" NC 5K & 1.5 Mile Walk This event promises to be the biggest yet! This is a brand new course the Town of Rolesville certified, so we are expecting a large runner turnout!There will be a picnic afterwards in the Main Street Rolesville Park, so this will be…

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November 2015

$30,000 Matching Grant Challenge for Cure AHC

November 1, 2015 @ 12:00 am - December 31, 2015 @ 11:55 pm

This Giving Season you can make a REAL difference. YOU can Give the Gift of a Cure. We have the opportunity to tap into $30,000 IF we raise $30,000 by December 31! The $60,000 total will ensure that the Clinical Coordinator for the Duke AHC Clinic will be funded for another year. Cure AHC also has several research projects pending for 2016 totaling $500,000- projects that could bring the BREAKTHROUGHS we need! These projects include: Increased screening for candidate compounds…

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December 2015

Cure AHC Giving Tuesday

December 1, 2015 @ 12:00 am - 11:55 pm

  Cure AHC will be participating in the #GivingTuesday online fundraising event this December 1st. Our efforts will be in conjunction with our End of Year Grant Challenge Campaign. As part of that campaign, we will leverage our partner MobileCause to easily facilitate donations. Please see http://cureahc.org/?p=6970 for details!

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January 2016

International AHC Day

January 18, 2016

Monday, January 18 2016 will mark the 4 year anniversary of Duke University researchers confirming the discovery that mutations in ATP1A3 gene are causative for alternating hemiplegia of childhood (AHC). Cure AHC will be celebrating this event around the world with various supporters coordinating local events to raise awareness of AHC and possibly additional funding for research. If you would like to host an event contact us at info@cureahc.org

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May 2016

The #BunnyEarChallenge

May 1, 2016 @ 12:00 am - July 31, 2016 @ 11:55 pm
Cure AHC, 545 Irina DR
Rolesville, 27571 United States
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Cure AHC is excited this spring to launch a fun way to raise awareness (and funds!) for Alternating Hemiplegia of Childhood. Remember the success of the Ice Bucket Challenge? We think we have started something with the potential to go just as viral. It is EASY, FUN and NOT SO COLD! We call it the Bunny Ear Challenge. Our 'Cure AHC Bunny Ear Challenge' video on YouTube explains some of what to do. Under the hashtag #BunnyEarChallenge, we want social…

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Cure AHC Podcast- Dr. Mohamad Mikati Duke AHC Clinic Director

May 10, 2016 @ 11:00 am - 12:00 pm

Cure AHC is pleased to announce we have a tremendous opportunity on May 10th for AHC families. On Tuesday, May 10th, from 11 AM -12 PM (Eastern Time), Cure AHC will host a podcast with Dr. Mohamad Mikati, leading expert on AHC and Director of the Duke AHC Multidisciplinary Clinic. Dr. Mikati will talk about the clinic, the Natural History Project, address research in general, and will answer some pre-submitted questions from the community. Again, this will take place from…

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June 2016
$200

Cure AHC 2nd Annual One in a Million Golf Outing

June 27, 2016 @ 11:00 am - 8:30 pm
Knoll West Country Club, 990 Greenbank Drive
Boonton Township, NJ 07005 United States
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Please Register Here (You will Pay for Registration on Next Page)   First NameLast Name Street City State/Province Zip Mobile Email T-Shirt Size: Needs and Requests:

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July 2016

2nd Annual Cure AHC Virtual Run/Walk/Active Fundraising Event

July 15, 2016 @ 12:00 am - July 31, 2016 @ 11:55 pm

If you enjoy running or walking, biking, and the like in honor of an AHC Champion (or would like to start doing so), then please join in the fun July 15-29. This is our 2nd Annual Virtual Run/Walk/Active Fundraising Event. This event celebrates the Anniversary of the publication of the AHC Gene Find by Duke University July 29, 2012. It is very simple to Participate: 1.  Register via this form (please write in Virtual Event16" in the Event Name) First…

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$25

2nd Annual Cure AHC Chicago Walk

July 23, 2016 @ 10:00 am - 2:00 pm
McCollum Park, 6801 S. Main St
Downers Grove, IL 60516 United States
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July 23 will be a big day of celebration, awareness, and fundraising for Cure AHC in the beautiful Chicago Suburb of Downers Grove. This family friendly event will celebrate the birthday's of AHC Champions Alex (IL, USA) and Matthew (NC, USA) You will want to register & start fundraising NOW, as those who raise at least $100 will be eligible for a drawing to WIN 7 night accommodations at Hacienda Tres Rios in Playa del Carmen, Mexico! Please  use the…

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September 2016

3rd Annual Del’s Ride

September 18, 2016 @ 11:00 am - 6:00 pm
Sleepy Hollow Inn, Ski & Bike Center, 427 Ski Lodge Dr
Huntington, VT United States
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Del's Ride- Climb for a Cure   Del's Ride is a single track mountain bike event and trail run (new in 2016!), to benefit Cure AHC in support of Delaney Johnson. 7-year-old Delaney, of Essex Junction, Vermont, has a debilitating disorder known as Alternating Hemiplegia of Childhood (AHC) and Epilepsy. There is currently no cure or 100% effective treatment for AHC. This year our fundraising goal is $20,000. You can help us beat it by JOINING US!   Can't make…

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