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October 2017

Annual Cure AHC NC Womanless Beauty Pageant

October 21, 2017 @ 4:00 pm - 8:00 pm UTC+0
Thomas G. Crowder Woodlands Center, 5611 Jaguar Drive
Raleigh, 27606 United States
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$50

Get ready for an event that is sure to entertain (and will bring us even closer to the Cure!) Saturday, October 21 at 4 PM, 10 "beauties" will take the stage at the Thomas G. Crowder Woodland Center in Raleigh, NC to show off their talents, and woo you to support them to win fantastic prizes as we raise funds for research to cure the rare disease alternating hemiplegia of childhood. There will be food, a silent auction, vendors and…

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November 2017

Kick off of new Cure AHC website

November 1, 2017

We are pleased to present our new website!

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June 2018

4th Annual Cure AHC 1 in a Million NJ Golf Outing

June 25 @ 11:30 am - 8:30 pm EDT
Knoll West Country Club, 990 Greenbank Road
Boonton, NJ 07005 United States
$225

   

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September 2018

5th Annual Del’s Ride for Cure AHC

September 9 @ 11:00 am - 5:00 pm EDT
Sleepy Hollow Ski and Bike Center, 427 Ski Lodge Drive
Huntington, VT 05462 United States
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    Join us for the 5th annual Del's Ride at Sleepy Hollow Ski and Bike Center in Huntington VT. This mountain bike ride and trail run raises money to benefit Cure AHC: Alternating Hemiplegia of Childhood in support of 9-year-old Delaney Johnson of Essex Junction, VT. Delaney has a debilitating disorder known as Alternating Hemiplegia of Childhood (AHC) and epilepsy. There is no cure or 100 percent effective treatment for AHC, which is characterized by recurrent episodes of temporary paralysis, often affecting…

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Kathryn Budinich Remembrance Golf Tournament

September 17 @ 8:00 am - 5:00 pm UTC+0
skyway golf course, 515 Duncan Ave.
Jersey City, NJ 07306 United States
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Skyway Golf Course at Lincoln Park West in Jersey City, NJ will be the scene of fun and remembrance on Monday, September 17. Hosted by 15 Fox Place, this fundraising 9-hole golf tournament will honor the life of Kathryn Budinich, neighbor of Cure AHC VP Tony Pena. Funds raised will be split equally between a memorial scholarship fund in Kathryn's name and Cure AHC. We are grateful to the Budinich Family for their generous support of our research projects and…

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