Four AHC associations fund international AHC patient registry

Four AHC associations fund international AHC patient registry

 

 

 

 

 

AHC Vereniging Nederland, AHC UK support groupCure AHC and the AHC Association of Iceland have joined forces to fund the IAHCRC-CLOUD platform which will be operated by the International AHC Research Consortium in collaboration with patient driven AHC associations.
This project is headed by Rosaria Vavassori who is the IAHCRC Data Manager and will be crucial for new studies, trials and collecting of information for the international AHC community.

The IAHCRC-CLOUD platform will be developed by the IEMEST Institute

The IAHCRC International Consortium for the Research on AHC and other ATP1A3 related diseases was created officially on November 2014
The Consortium involves clinicians, geneticists and researchers working at University centers in Europe, USA and Australia; it works in close collaboration with health professionals and patients

IAHCRC-CLOUD Platform is an on-line platform that collects and hosts data from IAHCRC Centers and from external sources and shares them for the IAHCRC Studies and Projects. The registry is Accessible to Researchers, Clinicians and Patients

 

 

 

 

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