Fundraising Updates – On the Way to $600K

Fundraising Updates – On the Way to $600K

We are excited to share with you a number of recent, ongoing, and upcoming fundraisers! We are very grateful for all the support!

two smiling faces, a woman and a girl for the Bunny Ear Challenge Bunny Ear Challenge – Please visit our Bunny Ear Challenge page to help make this campaign a HUGE success! (It’s like the ice bucket challenge, but not as wet or cold!) Let’s fill social media with pics and get the hashtags #BunnyEarChallenge and #CureAHC trending in social media platforms!





1 in a Million NJ Golf Outing1 in a Million NJ Golf OutingClick here for more information and to register or donate. In honor of AHC Champion James (MA, USA) the Second Annual 1 in a Million Golf Outing takes place June 27th at Knoll West Country Club in Boonton Township, NJ.






Virtual Run/Walk/Active Event fundraiserVirtual Run/Walk/Active Event– Anyone in the WORLD can participate in this one! This is in celebration of the 4th anniversary of the publication of the discovery of the genetic root cause of AHC. Click here to find out more!


Del’s Ride – This is a mountain bike ride and trail run in honor of AHC Champion Delaney (VT, USA) Click here for details and registration and donation information.


Kickin’ It for Koryn fundraiser signKickin’ It for Koryn – This was a DJ, food, and silent auction extravaganza organized by our Family Support Chair Stacie Confair-Stringer, in honor of her AHC Champion Koryn (PA, USA). She reports “A huge thank you to everyone that helped prepare, set up, attend, tear down, donate, etc. to help make Kickin It For Koryn a success! We did not have as many in attendance, but great things happen in small numbers and boy did it! 🙂 Today we raised $1,753.25. That much closer to a cure for AHC! Thank you and be blessed!”




Community of Sekolah Ciputra fundraising collageThe Community of Sekolah Ciputra, an IB World school in Surabaya, Indonesia, has continued their unprecedented support of student and AHC champion Patrick Way, and of Cure AHC through a number of fundraising initiatives this year. In addition to $650 raised through the school production of The Wizard of Oz and $150 from a group of year 11 students who chose Cure AHC as their school community and service project, there have been two more recent contributions which are worthy of mention.

Student Rachelle Alfina Sutanto decided to make her “Year 10 Personal Project” in support of Cure AHC. Rachelle wrote an original piece of piano music composed with the aim of providing relaxation and stress relief through music therapy. She also selected, arranged, played and recorded four songs, compiling them as an album. After selling these albums at the personal project exhibition and in her own time outside school, she managed to raise 2,275,000 Indonesian rupiah, approximately $170! The student council at the school (OSIS) followed Rachelle’s efforts by organizing a classical concert in the school theatre, titled “Bippity Boppity Boo” and comprised entirely of Disney orchestral scores. There were some incredible performances from the wider community of musicians in the region enjoyed by the 500 folks in attendance. The student council reported 5,000,000 Indonesian rupiah collected in contributions from the event, approximately $375! We at Cure AHC are very grateful for the generous support and awareness these fine students have exhibited. They are an inspiration to us all, as is the Way family – especially Patrick!

There are a number of other fundraisers in the works, but there is always room for more. We have a ton of ideas and thing YOU can do to help us get to $600,000. Just contact us and we’ll help you find something YOU can do! Thanks in advance!

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