Cure AHC believes the lives of those who suffer from Alternating Hemiplegia of Childhood and their families can be improved as we come together in search of better treatments and ultimately a cure for this debilitating childrenâ€™s neurological disorder. You have talents that can make a BIG difference in our efforts, without hurting your pocketbook or putting undue stress on your daily routine! We invite you to check out the following ways you can be part of the excitement (note the estimated time for each task).
Cure AHC Ambassador (5 hours per month) – Have the gift of gab? Like networking? Then this one is for YOU! In nearly every town & city there are networking events, speaking opportunities and expos that are prime opportunities to spread the word about what we are doing at Cure AHC & potentially attract supporters/donors. We can empower you with the materials & talking points youâ€™ll need to tell the Cure AHC story.
Blogger (1 hour per week) – Like to write about your experiences as a sufferer of Alternating Hemiplegia of Childhood, or as the parent, sibling, caregiver, or friend of an AHC sufferer? Here is your chance to let your writing skills shine! The more informative content we have on our site, the better we will be at attracting supporters and donors, and the more will be able to provide as far as knowledge for those dealing with this disease. We will provide you with ideas and tips for writing an intriguing, engaging and successful blog.
Parent Panel (1 hour per week) – This position is great for our parents of older children and adults who suffer from Alternating Hemiplegia of Childhood. You have a wealth of experience in dealing with the disease and its myriad of challenges. Each week weâ€™ll present a topic & give you the opportunity to share your perspective on the item during a podcast-type segment. This way we capture some great knowledge in an easy to search and share format to help all our families improve their lives.
Fundraising Committee (1-3 hours per week) – Are you good at planning and organizing? Then you will LOVE this opportunity. Cure AHC has come up with several great ideas for fundraising campaigns. You will be an integral part of turning them into reality! This committee will work to scope out the logistics and budget needs for each of the campaigns we have in mind, determine which ones are viable & execute the ones we want to pursue. Naturally we will partner with you to ensure your success!
To request more information, or to get started on one of these, please email email@example.com