WHO WE ARE
A Non-Profit organization, Cure AHC exists to find a cure for Alternating Hemiplegia of Childhood (AHC), a rare and painful children’s neurological disorder, by raising awareness & fundraising and to facilitate the collaborative research needed to discover effective treatments and a cure for every case of Alternating Hemiplegia of Childhood (AHC) worldwide.
Cure AHC founders, Jeff & Renee Wuchich, are the parents of 9 year old Matthew who is afflicted with Alternating Hemiplegia of Childhood (AHC), a rare and incurable children’s neurological disorder. Along with other AHC parents, physicians, scientists and children’s rare disease advocates, they tirelessly work to meet this disorder head on to make a difference for all who suffer from Alternating Hemiplegia of Childhood (AHC). You can make a huge difference by participating in sharing information about Alternating Hemiplegia of Childhood and Cure AHC’s progress, events and efforts to raise desperately needed research funds.
Cure AHC envisions a world where Alternating Hemiplegia of Childhood no longer robs its sufferers of the chance to participate fully in life. We seek a time where no case goes undiagnosed for lack of awareness. We believe that collaboration is critical for those suffering now, and for those yet to come.
Cure AHC was created in order to raise funds necessary to facilitate research aimed at treating and ultimately curing Alternating Hemiplegia of Childhood (AHC). We do this by partnering with physicians and organizations worldwide and supporting families who live with AHC every day. By bringing together donors, researchers and families we believe a cure for AHC is within reach.
GENESIS OF CURE AHC – Brussels Symposium 2012
December, 2012 marked an historic time for AHC research & parent interaction. On the heels of Duke University discovering the mutation in ATP1A3, Duke, in partnership with ENRAH, facilitated a global gathering of researchers along with the heads of nearly every AHC Patient Advocacy group in the world.
Cure AHC Co-Founder & President, Jeff Wuchich, attended this symposium (then as a concerned parent representing concerned parents in the US) thanks to the invitation of the European AHC Association heads & the generosity of both Norphan Pharmaceuticals & AHC Association of Iceland President SigurÃ°ur H JÃ³hannesson. This conference netted the strengthening of collaborative partnerships begun during the validation of the ATP1A3 mutation. The conference has already begun to bear fruit in some of the announcements here on this site, with many more to come.
With Duke University acting as a key facilitator for the ongoing collaborative efforts, Jeff & his wife Renee recognized the value in forming an organization based in NC to work closely with Duke, with the international researchers, and with the other patient groups involved in the Symposium. A number of other parents agreed, as did some business professionals sympathetic to our children (meet our Team). Thus Cure AHC formed and our journey to empower sufferers of Alternating Hemiplegia of Childhood (AHC) and their families NOW has begun. We invite you to join us, as we are “soaring on wings of HOPE”.