What Is AHC Like

What is living with AHC like? Well, it is a very complex disease. We have found describing it in terms of more familiar diseases to be helpful. Alternating Hemiplegia of Childhood creates
AHC Champion James MA USA brochure 6 22 16

  • Movement problems like Cerebral Palsy
  • Learning challenges like autism
  • Behavioral issues like ADHD
  • True Epilepsy in at least 50% of cases
  • Bouts of temporary paralysis that last for minutes to days at a time
  • Currently incurable and essentially untreatable
  • In other words…very debilitating and heartbreaking!

There is a spectrum of severity, with ranges from fully wheelchair-bound individuals to those who are able to live semi-independently. We call those living with AHC “Champions”, for they triumph over the significant limitations of their disease in amazing ways!  Despite these challenges, AHC Champions are very determined & good spirited children& adults. Their parents are truly exceptional people, managing a dizzying array of medical appointments, therapists, case workers, teachers, medical equipment providers, and other caregivers.

Cure AHC is actively involved in finding ways to empower Alternating Hemiplegia of Childhood sufferers & their families to deal with the complexities of living with AHC.

Heart Montage Master


Read Stories of AHC Champions





Read About the AHC Multidisciplinary Clinic at Duke Children’s Hospital


Please visit our Family Support Blog for insight and information on living with AHC.






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