Ongoing Research Updates
Family Support
Partners- The Key to Success!
Duke University Global
Multi-Specialty AHC Clinic
Cure AHC -IRun4 Partnership- Get your Buddy!
Challenge Goal MET!! THANK YOU!!
AHC Research Consortium
What is AHC Like
Mission & Vision
Events & Fundraisers


Welcome to Cure AHC  

While Alternating Hemiplegia of Childhood (AHC) is a very debilitating, complex and incurable disease, we at Cure AHC want you to know one thing: There is hope!

You’ll see that hope permeating this site. On the heels of research breakthroughs and the International Symposium in Brussels December, 2012, our partnership with Duke University and the European Federation for AHC, are aggressively pursuing research directions that have us optimistic about the potential to effectively treat or cure AHC in the next 10-15 years.

We are discovering innovative ways to enhance the quality of life for Alternating Hemiplegia of Childhood sufferers now and are making great progress in the areas of

  • Gathering resources for cognition and learning
  • Partnering with Mobility Equipment providers to streamline the process of getting needed equipment
  • Working to connect with Caregivers to provide them with the latest techniques to help an AHC patient
  • Working with experts to create customized care plans for AHC sufferers

Whether you are a parent, friend, or relative of a child afflicted with Alternating Hemiplegia of Childhood, an AHC group or organization, a medical professional caring for an AHC patient, a potential or existing research partner, a member of the media, or a potential or existing donor or supporter, we hope you will find this site interactive, informative, and above all inspirational and that you will take action and help us to Cure AHC worldwide!

We invite you to meet our team, fall in love with our children and adults, explore our site, and get involved! Together we have the power to Cure AHC worldwide! We encourage your feedback!

Cure AHC is a 501 ( c) 3 Nonprofit. Download our Determination Letter HERE for your Fundraiser or records.


Breaking News

Cure AHC Awards $45,000 Research Grant

On January 8, 2015, the Cure AHC Board of Directors at the Monthly Board Meeting voted to approve a $45,000 research grant to Dr....

Cure AHC Car Magnet & Key Chain Matthew Bear Sweepstakes

Cure AHC is pleased to announce Our Car Magnet & Key Chain Matthew Bear Sweepstakes! Here is how it works: 1. Purchase 1 (or more)...

Introducing the IAHCRC

(Taken from the press release 28 November 2014 with additional material from the introduction page of the Consortium Website)...

Events & Campaigns

AHC International Alliance Awareness Video

Rare Disease Day Video