We are excited to share our new awareness video. This 2 minute animated video is perfect to share with anybody, anywhere, anytime, right from your smartphone or tablet. So we suggest you have it bookmarked and ready to go. We also have an email template you can use to email to your friends and contacts, send to the media, etc. Read more about it here!

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What is Alternating Hemiplegia of Childhood (AHC)?
Find out what Alternating Hemiplegia of Childhood (AHC) is like and what Cure AHC is doing to improve Quality of Life for AHC Champions!
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AHC Documentary
The AHC Documentary is a collaborative effort of AHC Associations, led by the AHC Association of Iceland, to portray the struggles families face dealing with Alternating Hemiplegia of Childhood.
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2017 Family Gathering
Read about and register for the AHC Family Gathering
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Research
In just a few short years, researchers worldwide have made great strides in understanding Alternating Hemiplegia of Childhood (AHC)
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Latest News

Cure AHC celebrated International Rare Disease weeks in a variety of ways.

Our Board Member Satish (see pic at left) presented at a conference for Rare Diseases in India. Learn more about the event here.

Cure AHC Vice President Tony Pena Cure AHC Vice President Tony Pena Cure AHC Vice President Tony Pena went to Washington DC to represent Cure AHC in meetings on Capitol Hill with members of Congress to advocate for a variety of needs for the rare disease community.

Rare Disease Legislative Advocates (RDLA), who organized the events in DC, also placed a 2-page ad in Politico (a regularly read paper of members of Congress and their staff) featuring all the groups who participated (you can see Cure AHC highlighted).

We are grateful to everyone who helped spread awareness about rare disease in general , and about AHC and Cure AHC’s efforts in particular). Awareness does lead to funding and funding will lead to a CURE!

 

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