Duke Alternating Hemiplegia of Childhood Multidisciplinary Program and Clinic
Cure AHC works closely with Duke Children’s Hospital. On March 6. 2013, they unveiled the 1st ever multidisciplinary AHC Clinic at Duke.
The Duke Alternating Hemiplegia program brings together specialists from various disciplines:
- Cognition & learning
- Motor Skill Development
- And more
There are several benefits to AHC patients and their families that the Duke Clinic will provide:
- Comprehensive and tailored evaluations of these children to help them and their families better identify the problems they have
- A Customized Care Plan to coordinate improved ongoing care with the AHC patient’s local care professionals to maximize quality of life.
- Collection of critical data for collaborative research to accelerate discoveries that may lead to the cure for AHC.
- Educating families and local caregivers on how to collect needed data in preparation for clinical trials when and if potential treatments/cures are discovered.
Any AHC patient is welcome at the clinic. Cure AHC is working to provide ways to reduce cost of transportation, and will also be able on a limited basis to help work with insurance companies for payment. For appointments or any other questions please visit the Duke AHC Clinic Site, call 919-668-6751 or email dukeAHC@dm.duke.edu
This is the poster Cure AHC & Dr. Mikati Presented at the 3rd ATP1A3 Symposium in Lunteren, Netherlands
You Can Help Sponsor An AHC Family!
Your donation will sponsor families around the globe to pay for travel expenses and medical testing not covered by insurance or state programs. You can help us send up to 50 families to the Duke AHC Clinic! Please make a donation today and help us Cure AHC.