Jeff is a successful software sales executive and business owner with over 22 years’ experience in making deals happen & building lasting relationships. He & his wife Renee co-founded Cure AHC in 2013, and Jeff has been its President from the start. Jeff & Renee organize/participate in numerous fundraisers from local to international to raise funds for AHC research and awareness. Their inspiration is their 11-year-old son Matthew, who has AHC. Jeff has a BA Psychology from the University of Chicago, and an M.Div. from Asbury Theological Seminary, with plans to graduate in 2020 with a MA Pastoral Counseling from Asbury to eventually pursue private practice as a pastoral counselor. Jeff enjoys gardening, reading, playing video games, & quality time with his family. He is also a lifelong Chicago sports fan, with his all-time favorite team being the 2016 World Series Champion Chicago Cubs.
Rolesville, NC ... more
Renee is a successful CPA and business owner with over 20 years experience in accounting. She has both a BA Accounting and MBA from Campbell University. She has worked for large international corporations, government and now is the Finance Manage for a Periodontist office, and also focuses on non-profits. Renee & her husband Jeff organize/participate in a number of fundraisers from local to international to raise funds for AHC research and awareness. Their inspiration is their 9 year old son Matthew, who has AHC. Renee enjoys reading, word puzzles, & quality time with family.
Rolesville, NC ... more
Tony is a recent retiree of Citibank, NA where he spent 45 years in various Client Service and Operations groups. Most recently he was VP of Customer Service within the Commercial NYC Banking Division. Tony obtained his Bachelor’s degree from Fordham University, NY. He is the father of fellow Cure AHC Board Member Andrew Pena, and the grandfather of AHC Champion James (MA, USA). He lives with his wife, Anita in Nutley, NJ.
Nutley, NJ ... more
A member of The Johns Hopkins University Class of 2018, Maria studies Cognitive Science and French. Maria is also an active member of the JHU chapter of Active Minds, and she currently serves as the treasurer of the Orthodox Christian Fellowship, and as a Public Relations chair of her school’s Global Medical Brigades chapter. In addition, she works as a research assistant in the Johns Hopkins Lab for Child Development, where she studies the origins of math anxiety, and she interns in the Penn State Hershey Medical Center Department of Neurosurgery NMR Lab, where she studies the role of iron in the etiology of Alzheimer’s disease. Her friendship with AHC champion Koryn (PA, USA) has fueled her deep interest in the brain; in particular, the manifestation of all manners of neurological, neurodevelopmental, and neurodegenerative conditions. Among her future goals, Maria plans to pursue an MD/PhD, and subsequently a career as a physician scientist dedicated to serving and improving the lives of others, including those with AHC.
Baltimore, MD ... more
Steve has over twenty years of experience in Finance and Technology. He has been employed by a wide spectrum of organizations, ranging from Fortune 50 companies to Big 4 Consulting, such as his current employer, Ernst & Young. Steve is a Certified Public Accountant (CPA) and Certified Management Accountant (CMA). He lives with his wife and two children in Naperville, IL. Steve is excited to make a difference for AHC Champions with his expertise and network of contacts.
Naperville, IL ... more
Andrew works at Eisler Capital, a global macro hedge fund based in London. Andrew has over 19 years of financial markets’ experience, including over 17 years at The Goldman Sachs Group where he was a Managing Director and Head of Asia Macro Sales in Hong Kong, and prior to that Head of Commodity Hedge Fund Sales in London. Most recently at Morgan Stanley, he was a Managing Director & Head of Foreign Exchange Institutional Sales in London. Andrew earned a BA in Psychology from Boston College in 1999. Andrew is the brother of Margaux Hufnagel, who with her husband Jim are parents of AHC Champion James (MA, USA).
London, UK ... more
Stacie owns a cleaning business and attends the University of Phoenix where she has obtained her associates degree in psychology and is currently working on her bachelors. She recently married James Stringer and has two children Koryn and Richard. Stacie holds an annual fundraiser for her daughter Koryn who is diagnosed with AHC. She is passionate about helping others and her goal is to help in any way possible to find treatment and eventually a cure for AHC.
Hershey, PA ... more
Bill is a child psychotherapist in private practice and father of four, the oldest of which has AHC. His daughter Emory was diagnosed just after her 1st birthday. Bill and his family held the Hope for Emory walk for several years, and Bill has previously served Cure AHC as Vice President. He remains excited about participating in the AHC community in new ways. Bill’s interests include chasing his children around, learning new things and child development, especially the impact of early childhood trauma.
St. Louis, MO ... more
Lise is Danish, but she has been living in Chile for the past 12 years with her Chilean husband. She has a 4 year old daughter named Eva, diagnosed with AHC at the age of 1. She is a certified translator and interpreter graduated from Copenhagen Business School, Denmark in 2006. She has been working in different Chilean companies and the Danish Embassy in Santiago in secretary positions until she became an independent freelancer in 2008 due to illness in her family. Since then she has been teaching private classes of Danish, Spanish and English and translating from home.
Santiago, Chile ... more
Satish is an ICT consultant and Chartered Engineer. He has 15 years of experience in Software Engineering, Project Management, Techno marketing, Field Trial Management and Boot strapping startups in government and Multinational companies. : He is a graduate in Computer Science and Engineering, MBA (Information Systems) and Diploma in Quality Management. His wife, Meena is a graduate in Bio-Chemistry and holds a PG Diploma in Medical Laboratory technology and an MBA specialized in International Business. Currently she takes care of our 2 kids full time as a home maker. His eldest daughter is in her 4th grade. His younger Champion is Hari who is 3 years old, was diagnosed with AHC at the age of 1 He has delays in developmental milestones like gross/fine/cognitive/speech skills. Beware, he has a contagious smile.
India ... more
Amr Y. Eissa, M.D
Amr is a Johns Hopkins-educated Senior Executive, C-Suite Officer, Entrepreneur, Consultant and Board Member with over 27 years of proven success in tech, biotech, medical device, biopharma and healthcare. Amr has held leadership positions at International Venture Partners/International Consulting Group (Founder/President/CEO) with clients that include Apple, Cisco, Adobe, Symantec, HP, Abbott, Analysis Group, Applied Bio, BioMarin, Celera, Galderma, GSK, InClin, Medivector, Merck, Nektar, Johnson & Johnson, Penumbra, Puma Biotech, St. Jude Medical and Taiho. He is a member of Vistage International, an invitation-only club for successful CEOs, with companies who’s top line revenue is in the $5M to $500M range. In his spare time, Amr enjoys going to the beach with his family and is an avid car racing buff, who along with one of his children, sponsors Camel Jockey Racing!
Saratoga, CA ... more
Simon Frost, CPA
Simon and his wife Nina are the parents of Annabel, who has AHC, and Clara her older sister. Simon serves as the Chief Financial Officer at Greencourt Group. He has spent most of his career in real estate investment, operations, and development. Simon holds Bachelor’s and Master’s degrees in Economics from the Cambridge University in the UK, and a Bachelor’s degree in Finance from The University of South Africa. He also holds an active CPA license in Washington DC.
Washington, DC ... more
Dr. Leigh J. Mack
Leigh is currently the Chief Medical Technology Officer at Crucial Data Solutions, Inc. He is a
graduate of USAT Montserrat; holding both MD and PhD degrees. Dr. Mack has post graduate training in Nanotechnology (nanomedicine) from University of Oxford. He trained at John Radcliffe Hospital (University of Oxford/NHS) in Trauma Plastics. Dr. Mack is a Certified Principal Investigator (CPI – ACRP); and a Fellow
of the Academy of Physicians in Clinical Research. Recently, became a member of the ACRP Academy Standards Setting Committee for the new CPI exam. Dr. Mack served in the US Army National Guard for 7
Cary, NC ... more
Louis J Lafrado
Louis is a veterinary pathologist with a doctorate from The Ohio State University with a specialty in retroviral pathology and vaccine development. Since 2000, he has been president of L&D Associates Consulting Group, Inc in New Mexico which specializes in program development including grantmaking, program evaluation and research with nonprofit organizations and American Indian Tribes in health promotion and disease prevention. This experience will be brought to bear for Cure AHC as we develop a sustainable grant-funded program for AHC research and support efforts. Lou’s interests include hockey as a spectator and player and music as a guitarist and musician.
Albuquerque, NM ... more
Corie is an Occupational Therapist who has worked in many different settings including neurology, orthopedics, pediatrics and currently works in the home care setting assisting patients to be as independent and functional in their daily lives. Corie has a Bachelors degree in Psychology specializing in mental health in addition to a Masters degree in Occupational Therapy. Corie has also worked in the research field as a research assistant for pharmaceutical research trials focusing on psychiatric and mental health care. Corie and her husband Josh reside in Connecticut and have two boys Tyler who is 6 years old and Cameron who is 3 years old. Cameron was diagnosed with AHC when he was 6 months old. She is passionate about finding a cure to allow for all AHC champions to live a functional life free from pain and episodes.