Cure AHC’s mission is threefold-
- to find the likely thousands of undiagnosed or misdiagnosed patients in the world
- to dramatically improve quality of life for all those with alternating hemiplegia of childhood
- to fund research to get to the cure.
Cure AHC envisions a world where Alternating Hemiplegia of Childhood no longer robs its sufferers of the chance to participate fully in life, and where no case goes undiagnosed for lack of awareness.
Click here for our Strategic Plan – Getting Closer and Closer to a Cure
Genesis of Cure AHC – Brussels Symposium 2012
December, 2012 marked a historic time for AHC research and parent interaction. On the heels of Duke University discovering the mutation in ATP1A3, Duke, in partnership with ENRAH, facilitated a global gathering of researchers along with the heads of nearly every AHC Patient Advocacy group in the world.
Cure AHC Co-Founder and President, Jeff Wuchich, attended this symposium (then as a concerned parent representing concerned parent in the US) thanks to the invitation of the European AHC Association heads and the generosity of both Norphan Pharmaceuticals and AHC Association of Ireland President SigurÃ°ur H JÃ³hannesson. This conference netted the strengthening of collaborative efforts, Jeff and his wife Renee recognized the value in forming an organization based in NC to work closely with Duke, with the international researchers, and with other patient groups involved in the Symposium. A number of other parents agreed, as did some
business professionals sympathetic to our children (meet our team). Thus Cure AHC formed and our journey to empower sufferers of Alternating Hemiplegia of Childhood (AHC) and their families NOW has begun. We invite you to join us, as we are “soaring on wings of HOPE.”